Wednesday, April 25, 2012

Emiliano's Story

Emiliano
Age 8
Arkansas Children's Hospital
Bone Marrow Disease

Pushing harder and harder on the pedals, 4-year-old Emiliano builds up to rocket speed on his tricycle. With his parents chasing close behind to keep his pump attached, Emiliano doesn’t let a crucial surgery stop him from having fun in the halls of his hospital.

It was during this time that Emiliano was diagnosed with severe aplastic anemia, a bone marrow disease that affects only two in every one million people. As a result, Emiliano’s body struggled to fight infections and internal bleeding. After his body rejected standard medications and his first bone marrow transplant, Emiliano found hope in his second donor and hero – his dad.

Praised for his bravery by doctors and nurses, Emiliano continues to stand out. He has even launched an awareness campaign in his parent’s native country of Mexico to educate on the dire need for marrow donations. Four years later, Emiliano is still riding forward in life singing, watching movies with his family, folding origami and playing guitar.

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 54 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.